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Tinnitus success stories? Effects Pedals, Units & Accessories
Old 9th May 2017
  #181
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eightyeightkeys's Avatar
Quote:
Originally Posted by Frequency View Post

Anyone out there who has overcome tinnitus and other hearing problems?

:-)
Yes !!!

Had a miserable low frequency hum in my right ear about 10 years ago. It was bad !

I'd been to 2 ENT specialists and got such unexpectedly poor & apathetic responses to my situation, I was shocked. Basically, I left with a "there's nothing we can do" and a photocopied sheet of paper on how to "cope" with tinnitus. It left me quite depressed.

I read and read about it and then stumbled on to a thread on another pro audio forum. Someone mentioned a product developed and used by the military for those who suffered from tinnitus resulting from repeated exposure to gun fire. It was found that those subjects who used NAC before shooting on the gun range developed far less or no symptoms while those who didn't use it continued to suffer. Not only that, those people who then followed up with higher doses on a daily basis had experienced partial or complete reversal of tinnitus.

Hell, that was good enough for me !

I purchased 5 bottles and took one pill, three times daily. I'm not going to lie...it took a long time and the effect was so gradual....almost unnoticeable. The only way I did notice what it was doing was when we went up north into the bush for a couple of weeks camping and I forgot my NAC. We were walking in a super quiet forest and when we stopped for a drink suddenly I noticed my ears "close up" almost like a pair of ear muffs went over my ears. I thought that it was really weird. The feeling continued and I was puzzled.......then a light buld went off in my head ! I remembered that I forgot the NAC !!!!

Immediately, when we got home I resumed the pills and after a few days the "ear muffs" came off and my hearing resumed this feeling of clarity.

I continued taking the NAC for one year !!! and the tinnitus gradually went away. Completely !!!

I haven't taken the pills now for 6 years probably and no longer suffer from that low frequency hum at all. But, I have a stash...just in case.

Of course ymmv....

Gotta thank Bill Mueller !!!!!!!!!!!!!!!!!!! He was the one who turned me on to that product.

Last edited by eightyeightkeys; 10th May 2017 at 05:31 AM..
Old 9th May 2017
  #182
Gear Maniac
 
DaPhunk73's Avatar
 

Quote:
Originally Posted by eightyeightkeys View Post
Yes !!!

Had a miserable low frequency hum in my right ear about 10 years ago. It was bad !

I'd been to 2 ENT specialists and got such unexpectedly poor & apathetic responses to my situation, I was shocked. Basically, I left with a "there's nothing we can do" and a photocopied sheet of paper on how to "cope" with tinnitus. It left me quite depressed.

I read and read about it and then stumbled on to a thread on another pro audio forum. Someone mentioned a product developed and used by the military for those who suffered from tinnitus resulting from repeated exposure to gun fire. It was found that those subjects who used NAC before shooting on the gun range developed far less or no symptoms while those who didn't use it continued to suffer. Not only that, those people who then followed up with higher doses on a daily basis had experienced partial or complete reversal of tinnitus.

Hell, that was good enough for me !

I purchased 5 bottles and took one pill, three times daily. I'm not going to lie...it took a long time and the effect was so gradual....almost unnoticeable. The only way I did notice what it was doing was when we went up north into the bush for a couple of weeks camping and I forgot my NAC. We were walking in a super quiet forest and when we stopped for a drink suddenly I noticed my ears "close up" almost like a pair of ear muffs went over my ears. I thought that it was really weird. The feeling continued and I was puzzled.......then a light buld went off in my head ! I remembered that I forgot the NAC !!!!

Immediately, when we got home I resumed the pills and after a few days the "ear muffs" came off and my hearing resumed this feeling of clarity.

I continued taking the NAC for one year !!! and the tinnitus gradually went away. Completely !!!

I haven't taken the pills now for 6 years probably and no longer suffer from that low frequency hum at all. But, I have a stash...just in case.

Of course ymmv....

Gotta thank Bill Mueller !!!!!!!!!!!!!!!!!!!! He was the one who turned me on to that product.
This might be a stupid question, but what is NAC?
Old 9th May 2017
  #183
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eightyeightkeys's Avatar
Quote:
Originally Posted by DaPhunk73 View Post
This might be a stupid question, but what is NAC?
From Google

N-ACETYL CYSTEINE: Uses, Side Effects, Interactions and Warnings - WebMD
Old 10th May 2017
  #184
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Owen L T's Avatar
This being GS, with many of these posters being long-time members, I'm sure the people posting on here mean well. But the trouble is, that people may come along later, read these posts, and ... waste their money on snake oil.

So I have to say, again, that no peer reviewed study and no medical body anywhere in the world has ever found these herbal or supplement-based treatments to have any effect on the symptoms of tinnitus. None.

The Bill who suggested taking NAC, said on that same forum: "the Chinese have been taking Ginko for 3000 years for tinnitus and hearing problems" - which is a thoroughly disqualifying remark on many, many levels. The nonsense about ginko has been examined more than once and was thoroughly disproven in double-blind trials back in 2001.

There will always be people with anecdotal success stories - just as there are a certain percentage of people who experience remission from any number of other conditions, diseases and illnesses.

But not one of these has ever been shown to be more effective than a placebo.

Such evidence as there is regarding the very, very tenuous benefit of NAC relates to its use in limiting the hearing damage that can lead to tinnitus - https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4455974/

It was most certainly not "developed and used by the military for those who suffered from tinnitus". And I can say that with absolute certainty because, guess what: tinnitus has for some years been the number one complaint of US veterans. Yet, neither the VA nor any other site mentions any of these "treatments".

https://www.va.gov/health/newsfeatures/20110524a.asp

Tinnitus is Number One Disability For Veterans | Military.com

Here's one way to cut through the BS: the best estimates are that tinnitus currently affects, at a moderate-to-severe level, about 10% of the population. That's 30 million Americans at this moment. 6 million Brits. Hundreds of millions worldwide. When there IS something that is shown, clinically, to be effective - even if it helps as few as 25% of those sufferers - it will be a Big F****g Deal. It won't be some dude posting about Chinese herbal remedies on a forum: it will be front page news all around the world! (No, really, it will.)
Old 10th May 2017
  #185
Old 10th May 2017
  #186
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eightyeightkeys's Avatar
Quote:
Originally Posted by Owen L T View Post
This being GS, with many of these posters being long-time members, I'm sure the people posting on here mean well. But the trouble is, that people may come along later, read these posts, and ... waste their money on snake oil.

So I have to say, again, that no peer reviewed study and no medical body anywhere in the world has ever found these herbal or supplement-based treatments to have any effect on the symptoms of tinnitus. None.

The Bill who suggested taking NAC, said on that same forum: "the Chinese have been taking Ginko for 3000 years for tinnitus and hearing problems" - which is a thoroughly disqualifying remark on many, many levels. The nonsense about ginko has been examined more than once and was thoroughly disproven in double-blind trials back in 2001.

There will always be people with anecdotal success stories - just as there are a certain percentage of people who experience remission from any number of other conditions, diseases and illnesses.

But not one of these has ever been shown to be more effective than a placebo.

Such evidence as there is regarding the very, very tenuous benefit of NAC relates to its use in limiting the hearing damage that can lead to tinnitus - https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4455974/

It was most certainly not "developed and used by the military for those who suffered from tinnitus". And I can say that with absolute certainty because, guess what: tinnitus has for some years been the number one complaint of US veterans. Yet, neither the VA nor any other site mentions any of these "treatments".

https://www.va.gov/health/newsfeatures/20110524a.asp

Tinnitus is Number One Disability For Veterans | Military.com

Here's one way to cut through the BS: the best estimates are that tinnitus currently affects, at a moderate-to-severe level, about 10% of the population. That's 30 million Americans at this moment. 6 million Brits. Hundreds of millions worldwide. When there IS something that is shown, clinically, to be effective - even if it helps as few as 25% of those sufferers - it will be a Big F****g Deal. It won't be some dude posting about Chinese herbal remedies on a forum: it will be front page news all around the world! (No, really, it will.)
For whatever reason, it worked for me. It could have been a coincidence that the tiinitus went away on it's own as I was taking the NAC. That's why I also wrote, ymmv. But, ymmv with pharmaceuticals as well. One person may have severe side effects taking a certain drug, the next none...some drug may work for one not for another, etc...

I simply posted my "tinnitus success story." Take it for what it's worth. I know what it's worth for me.

Last edited by eightyeightkeys; 10th May 2017 at 05:53 AM..
Old 10th May 2017
  #188
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Owen L T's Avatar
Quote:
Originally Posted by eightyeightkeys View Post
For whatever reason, it worked for me. It could have been a coincidence that the tiinitus went away on it's own as I was taking the NAC. That's why I also wrote, ymmv. But, ymmv with pharmaceuticals as well. One person may have severe side effects taking a certain drug, the next none...some drug may work for one not for another, etc...

I simply posted my "tinnitus success story." Take it for what it's worth. I know what it's worth for me.
But it's not at all the same as "ymmv" with pharmaceuticals; no drugs are 100% effective, but for drugs to be approved as a treatment for something, they DO have to be shown, in double-blind trials, to produce significantly better results than the placebo group and than the group who took nothing.

No "remedy" of the kind you took has ever been shown to be more effective than a placebo - and not because there have been no trials, but because all the trials reach the same conclusion: they are of no clinical benefit.

I just pointed you to the VA article on tinnitus, which says exactly the same thing. As does the American Tinnitus Association, the British Tinnitus Association and literally every medical body on the planet.

Some get better over time anyway. Some of those people will have taken supplements. But there is no cause and effect there, even though you may think there is. The way we know this is through extrensive, repeated trials with large groups of patients.

There is so much misinformation out there, and writing about a supplement that "was designed with the military to help treat tinnitus" just adds to that confusion - and pads the pockets of those making money peddling non-effective bottles of stuff to people who are desperate.
Old 10th May 2017
  #189
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eightyeightkeys's Avatar
Owen's points are valid. I cannot be 100% sure that NAC cured my awful tinnitus. I would not want anyone to go buy a load and be disappointed. There was no follow-up by my ENT specialist to establish any cause effect. He wasn't even interested in hearing what my drone sounded like. Being a musician, I created a CD specifically for my Doctor in order that he might understand the frequency etc..."That won't help...no not interested" was his response.

So, I'll re-phrase : Coincidentally, after one year of taking NAC, my tinnitus went away. Completely. Additionally, during that period, after accidentally stopping to take NAC, I observed a general hearing clarity loss which was immediately resumed upon resumption of NAC.

It's been more than 10 years and I cannot find that exact article regarding the U.S. military and their trials with NAC. Here's a couple of other links :

A Magic Pill? Compound Could Mediate Noise-Induced Hearing Loss | ASHA News Leader | ASHA Publications

Efficacy of N-Acetyl Cysteine in Traumatic Brain Injury

I'll keep searching when I have more time.
Old 10th May 2017
  #190
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Regarding NAC, I first came across it when it was being marketed by a San Diego company as "The Hearing Pill". They claimed to be involved with the Navy and Navy pilots, and had found that taking NAC a few days before a mission cut down on hearing problems, tinnitus in particular. I used the pill and it did help. Later on, when the company went out of business, I found NAC from various other sources so I was able to continue using it. It helped with my tinnitus, but it was subtle. I have not used it for awhile, mostly out of laziness.

An ENT specialist can help. I was given turbinate injections - a cortisone shot into the membrane inside the nostril which completely drained my sinuses and helped my tinnitus and general quality of hearing, as well as my vision.

Cutting down on salt helped my tinnitus, suggesting that in some cases blood pressure is a factor. Decongestants can help, related again to pressure in the sinuses.

I occasionally use Tinitus Tamer which also helps a little.

The big point here is that it makes sense for sufferers to try changes in diet, changes in behavior, meditation, excercise - whatever you can to reduce the problems caused by tinitus. Even placebos can cause an apparent change in the tinitus, and a change is often a very welcome thing.

Good luck to all of you who suffer from this...

Best...H
Old 10th May 2017
  #191
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DaPhunk73's Avatar
 

Quote:
Originally Posted by Owen L T View Post
But it's not at all the same as "ymmv" with pharmaceuticals; no drugs are 100% effective, but for drugs to be approved as a treatment for something, they DO have to be shown, in double-blind trials, to produce significantly better results than the placebo group and than the group who took nothing.

No "remedy" of the kind you took has ever been shown to be more effective than a placebo - and not because there have been no trials, but because all the trials reach the same conclusion: they are of no clinical benefit.

I just pointed you to the VA article on tinnitus, which says exactly the same thing. As does the American Tinnitus Association, the British Tinnitus Association and literally every medical body on the planet.

Some get better over time anyway. Some of those people will have taken supplements. But there is no cause and effect there, even though you may think there is. The way we know this is through extrensive, repeated trials with large groups of patients.

There is so much misinformation out there, and writing about a supplement that "was designed with the military to help treat tinnitus" just adds to that confusion - and pads the pockets of those making money peddling non-effective bottles of stuff to people who are desperate.
Just curious, what is your opinion on acupuncture?
Old 10th May 2017
  #192
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Wyllys's Avatar
 

Quote:
Originally Posted by DaPhunk73 View Post
Just curious, what is your opinion on acupuncture?
I've really never been able to pin it down...
Old 10th May 2017
  #193
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ok, ill buy NAC asap.

hope it works, id cry if my tinnitus went away.
Old 10th May 2017
  #194
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Talking

Quote:
Originally Posted by Wyllys View Post
I've really never been able to pin it down...
Old 10th May 2017
  #195
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I don't know if it's been mentioned yet but I have seen one or two studies linking magnesium intake to a reduction in hearing loss and as a defense against hearing loss before sound exposure. I can do a search again in case anyone is interested. I seem to remember that they didn't know the mechanism by which magnesium worked for hearing loss, but speculated a little bit about it.

I highly recommend musicians' plugs if you're around loud noises at all, and especially if you spend a lot of time tracking, performing with loud or amplified instruments, or going to concerts. They were about $280 where I'm located, and you really only need to replace them every 4 or 5 years -- so that works out to about $70 a year, or $6 a month. Really not bad at all for protecting your hearing. I used to worried I'd look dorky wearing them around all the time to concerts and stuff, but I don't think anyone even notices them ... or if they do, they probably just think, "Ah, he must be a professional musician or audio engineer" (not a bad thing at all). Unlike the ****tier foam or $20 earplugs, musicians' plugs have flatter frequency responses so the sound well balanced and clear. Seriously one of the best investments I've made considering I play live shows, spend time in the studio, mix music, and go to concerts.

Anyway, sorry for the rant if it's information you already know about! :P I just like to spread the good word of anti-hearing loss.
Old 11th May 2017
  #196
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eightyeightkeys's Avatar
Quote:
Originally Posted by murphythecat87 View Post
ok, ill buy NAC asap.

hope it works, id cry if my tinnitus went away.
As Owen LT strongly pointed out, all of this is anecdotal. There is no real double blind tests that prove that this stuff works. I have only my anecdote to share. The O/P'er asked, so I shared. That's it.

But, once gain, I will repeat : be prepared for a l-o-n-g haul with NAC. If it does happen, it won't happen in a day, a week or a month. Be extremely patient.

The effect is so gradual, you really won't notice anything....then at about month 3 or so, stop taking it, after the second or third day, you might notice what I noticed......."swish" ....almost as if someone put cotton batten in your ears. Then !!! you'll have the feeling exactly what it's doing. Resume taking it right afterward and then notice again......if your experience mirrors mine, the feeling of openness will come back.

Buy 5/6 bottles...more !!!....I took one pill, three times daily. I experienced no side effects whatsoever.

This is the stuff I bought but maybe you can find it cheaper locally :
https://www.swansonvitamins.com/swan...00-mg-100-caps
Old 11th May 2017
  #197
Be aware that NAC is contraindicated if you are on blood thinners such as Warfarin. It will increase your chance of bleeding, screw with your PT/INR levels. Look it up on webmd if you are unsure, or consult with your doc.
Old 11th May 2017
  #198
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Owen L T's Avatar
Quote:
Originally Posted by eightyeightkeys View Post
As Owen LT strongly pointed out, all of this is anecdotal. There is no real double blind tests that prove that this stuff works.
"Strongly pointed out" is a wonderful, and polite way, of summing up my screed - that did make me laugh!

I went further than to say that there have been no tests to prove that it works; on the contrary, there have been ample double-blind tests that prove that this stuff does not work, and is no more effective than a placebo.

Literally every medical association in the world is clear on this. Every scientific paper, every clinical trial, every peer-reviewed analysis. There is nothing, to date, that has any effect on tinnitus symptoms - though there are numerous ways of learning to manage one's reaction to them.

It's great that you experienced remission, but these pills were not the reason for it.

My point isn't to do with your experience being anecdotal. It's that, despite decades of universal evidence that your remission was in no way related to those capsules, you continue to post about dosage, how long to expect to take them, and even a link to buy them - with a recommendation to buy at least 6 bottles.

In this way, however unwittingly, you now contribute to the snake-oil industry that will continue to peddle ineffective treatments for tinnitus, until such time as an actual treatment is available.

I have no doubt that you do, genuinely, want to help people. But encouraging people suffering from tinnitus to waste money on supplements that are of no possible benefit is NOT helping, regardless of your own remission. It only furthers the confusion and misinformation that has surrounded tinnitus for decades.
Old 11th May 2017
  #199
For German speaking sluts, here is a video series about an alternative therapy device called the "Revitaler".
In the video you also see a professional musician talking, who got rid of his tinnitus with the help of this device.

It´s basically a mat with plastic pyramids to stand or lie upon that will increase the blood flow in the whole body after a few minutes.

It´s in 6 parts:
Part 1: https://www.youtube.com/watch?v=wVIu-DqtcQI
Part 2: https://www.youtube.com/watch?v=88E0ClCpHb0
Part 3: https://www.youtube.com/watch?v=G2V8CZsvVQI
Part 4: https://www.youtube.com/watch?v=G4LKst7Ewp4
Part 5: https://www.youtube.com/watch?v=LZDPLdbd_Fg
Part 6: https://www.youtube.com/watch?v=5FG2KmACjT0

I have no affiliation to this company or product.
I own a Revitaler myself, and even though it helps me feel a lot better when applying it, it hasn´t completely got rid of my tinnitus after around 6 months of regular use. I´m not 100% sure but I think the noise has changed to be less pointy and quieter. I think I got the tinnitus a long time ago from playing the drums for 10 years. But even though I hear the tinnitus when it´s quiet I hardly ever notice it, so for me it´s no big problem anyway.

But who knows, different tinnituses might have different causes, so the Revitaler might help you still.
Old 11th May 2017
  #200
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eightyeightkeys's Avatar
Quote:
Originally Posted by Owen L T View Post
It's great that you experienced remission, but these pills were not the reason for it.
I posted my Tinnitus succes story from direct, personal experience taking NAC for one year. I'll repeat that I had a terrible low frequency drone in my right ear that had lasted for more than a year and for which I went to two specialists including an MRI. Nothing was found and no solutions were given other than a faded photocopied sheet on how to cope....pfff.

My tinnitus went into 100% remission only after taking NAC for one year in the doseage I mentioned previously. You can cite every f**king peer reviewed study you want but it makes no difference to me at all. I was unaware of any peer revoewed studies at the time I started taking it and had zero expectations that it would do anything at all.

All the same, though I cannot prove it, I'm convinced it was the NAC and I jump for joy that I was turned onto it. There is no possible other reason as I was not on ANY other medication whatsoever.

And, yes, for sure, I did notice a general clarity in my hearing as well. For f**king sure. That clarity, or drop in clarity was actually the very first clear indication that the NAC was doing anything at all. Upon resumption of the NAC, the clarity came back. Clear cause and effect. This clear indication gave me the reason to continue taking it. Nothing else because, at that point in time, the drone was still there. It was still 8-9 months away to the tinnitus dissapearing.

I'm not saying it will help anyone else. How can I ? Even my Doctor prescribes some sh*t and says, "here try this." But, For roughly one years worth of NAC, the cost of some plugins, not to try it ? Of course, as someone else wrote, consult your Doctor.

Last edited by eightyeightkeys; 12th May 2017 at 05:45 AM..
Old 12th May 2017
  #201
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Midnight Oil Audio's Avatar
 

Quote:
Originally Posted by Owen L T View Post
Literally every medical association in the world is clear on this. Every scientific paper, every clinical trial, every peer-reviewed analysis. There is nothing, to date, that has any effect on tinnitus symptoms - though there are numerous ways of learning to manage one's reaction to them.
And this is one of the reasons that new sufferers feel the wave of panic descend on them like a creeping demon as they realize there is no effective treatment for this condition other than "deal with it" (Although I will say that actually, benzodiazepines have proven to be very effective at short term relief of symptoms).

However, one thing I have learned after studying Tinnitus (too much) for a couple years now is that the causes are various and sundry. You see it caused by maladies such as: head injury, hormonal imbalance, acoustic trauma, viral infection, anxiety (!), barotrauma, acoustic neuroma, etc. With a condition that features so much heterogeneity, it is unlikely that double-blind treatment studies would work.

For example, lets say you have a group of 100 people with Tinnitus. 25 of them have it caused by a virus which has damaged the cochlea, 25 of them have it due to acoustic trauma, 25 of them have it due to hormonal imbalance and 25 of them have it to due to anxiety. So they go to a treatment study for some new "whiz-bang" drug. And let's say the 25 people who experience the tinnitus as a result of hormonal imbalance experience partial to complete alleviation of Tinnitus. On paper the treatment is a complete failure, as it only worked on 25% of the patients (I'm working under the assumption that the 100 participants aren't exactly sure what caused their Tinnitus). But what the study actually found was an effective treatment for Tinnitus that was caused by hormonal imbalance.

Is this an overly simplified view of the issue? Yes. But I believe the next step forward is distinguishing between the various underlying causes of the Tinnitus before moving forward with treatment. It has long been thought that Tinnitus is just something to expect if you play loud music for a long time - and this is partially true. But why on Earth do pregnant women with no history of being around loud noises wake up one day with screaming Tinnitus that decides to permanently take up residence in their head? The end result of their dysfunction, Tinnitus, is the same as something with acoustic trauma. But the pathway is very different.

TLDR; NAC may very well have worked for eightyeightkeys because the cause of his Tinnitus may have been something that is treatable with NAC. It would never be able to be proven with a large study unless the ability to distinguish the pathology of one type from another was uncovered first.
Old 12th May 2017
  #202
Quote:
Originally Posted by Owen L T View Post
Literally every medical association in the world is clear on this. Every scientific paper, every clinical trial, every peer-reviewed analysis. There is nothing, to date, that has any effect on tinnitus symptoms - though there are numerous ways of learning to manage one's reaction to them.
Well I've had to take vicodin at times for chronic back pain. Side effect warnings include "ringing in the ears". If I take it for any length of time, my tinnitus is very loud and noticeable. It diminishes about two weeks after I stop taking the meds. So at least one med definitely has an effect on tinnitus symptoms - not in a good way.

I have an allergy to dairy. The second I drink it my ears itch. I went to an ENT and confirmed that dairy causes eczema in my years. The ENT literally saw eczema "blooming" in my ears within a few seconds of drinking dairy. Several months after cutting out dairy 100%, my tinnitus diminished significantly to a point where it's no longer a problem. Every year during holidays, I allow myself to have diary and my itchy ears and tinnitus returns. Clears up a few weeks later. This has gone on for over 10 years.

If I drink alcohol, I get ringing in my ears the next day. It's very quiet but at some point in the day it'll become very loud for about 30 seconds and then fade to nothing. I figured out years ago the connection to alcohol. I believe the loud ringing and fade is somehow tied to the alcohol clearing from my system. I have tested this very carefully and I can almost perfectly time it. I know if I have two drinks at 8pm, for example, that 30 seconds of ringing will appear between 11am-12pm the next day. This is repeatable over years.

So I have to disagree the nothing has any effect on tinnitus. I have tested and found clear ways that have helped me manage my tinnitus - things I can do that make it worse to the point of distraction and annoyance, and things I can do that make it better to the point of being a non-problem.

You can call this all anecdotal if you like, since I'm a sample size of one. However, it is testable and repeatable over years.

That said, I do believe every body is different and may have different triggers and reactions to foods or meds or environment.

..ant
Old 12th May 2017
  #203
Quote:
Originally Posted by Midnight Oil Audio View Post
For example, lets say you have a group of 100 people with Tinnitus. 25 of them have it caused by a virus which has damaged the cochlea, 25 of them have it due to acoustic trauma, 25 of them have it due to hormonal imbalance and 25 of them have it to due to anxiety. So they go to a treatment study for some new "whiz-bang" drug. And let's say the 25 people who experience the tinnitus as a result of hormonal imbalance experience partial to complete alleviation of Tinnitus. On paper the treatment is a complete failure, as it only worked on 25% of the patients (I'm working under the assumption that the 100 participants aren't exactly sure what caused their Tinnitus). But what the study actually found was an effective treatment for Tinnitus that was caused by hormonal imbalance.

Is this an overly simplified view of the issue? Yes.
Actually, what you're describing is a well known issue in drug testing - drugs that fail clinical trails despite a percentage of folks who find significant improvement. The term is "exceptional responders".

I have a geneticist friend who is on the forefront of new cancer research that is going back to "failed" clinical trials and using DNA screening to, in effect, target drugs to smaller populations that may respond very positively while the majority of patients may not.

https://www.mskcc.org/blog/what-are-...nal-responders

This whole area of targeting drugs based on DNA profiling is one of the most promising areas of cancer research and really acknowledges that everyone responds differently to meds. It may be a similar situation with tinnitus and why there are so many anecdotal stories of people managing tinnitus in different ways that work for them, but perhaps not for others.

..ant
Old 12th May 2017
  #204
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Midnight Oil Audio's Avatar
 

Quote:
Originally Posted by antstudio View Post
Actually, what you're describing is a well known issue in drug testing - drugs that fail clinical trails despite a percentage of folks who find significant improvement. The term is "exceptional responders".
Hi Ant, I am aware of the phenomenon of "exceptional responders". The problem for the Tinnitus sufferers is watching these drug trials and holding their breath for the results of the trials only see the bottom line - the drug failed. Sometimes, there really IS a silver lining. Why did it work so well for a small percentage of people? What about them is different? There must be answer.
Old 12th May 2017
  #205
Quote:
Originally Posted by Midnight Oil Audio View Post
Why did it work so well for a small percentage of people? What about them is different? There must be answer.
The hope is that previously failed drugs can be matched through DNA to a sub-population with a similar genetic profile to the exceptional responders. Silver lining for sure and potentially very applicable to tinnitus.

..ant
Old 15th May 2017
  #206
Gear Head
 

I have taken NAC for a couple of months and have noticed a decrease in my high pitched tinnitus volume by about 50%. It does seem to help. My2c

Steve
Old 5th July 2017
  #207
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Quote:
Originally Posted by jchas View Post
I've had it non-stop for over 15 years. Strangely enough I woke up yesterday
with some mild virus (no energy, achey muscles) and had no ringing in my ears
all day. Well, i'm feeling better today - but the damn ringing is back.
I've had this exact experience and have found no literature on it. I have very mild tinnitus, very high pitched, mainly in the right ear. It can be exarcerbated by stress, different coffee, and fatigue. However, every time I've had a fever or virus my tinnitus completely goes away. It's unreal. Does anyone have info on this phenomenon? Thanks
Old 5th July 2017
  #208
Lives for gear
I get tinnitus sometimes usually from clogged/swollen sinuses. Cleaning your facial cavities out with a neti-pot, combined with anti-inflammatory or allergy medicine and doing exercises to help drain your sinuses can be a solution to tinnitus that isn't caused by nerve damage but pressure on the ear canal from swelling/inflammation.
Old 15th July 2017
  #209
Lives for gear
 
Arksun's Avatar
Been a while since I posted in this thread, when I had some horrific problems with my right ear hearing back in 2010. Thankfully most of the worst issues have thankfully healed over time. I still have tinnitus ringing in each ear of course at different frequencies, and when I run a slow mono sine wave sweep on headphones I can hear which bits are more damaged than others due to past years of going to clubs etc, but the constant sharp thumping of the eardrum on impact noises, distorted sound and sharpness around 3000hz (which was like being stabbed in the ear when someone placed cutlery on china plates) are pretty much all history now.

What was interesting from the MRI and CT scans done by the second and good ENT consultant was that they did indeed discover a small lump inside my head on the right side, situated unfortunately very close to where my eardrum is. It did grow a bit in size over 3 years, but the last scan I had done at the end of 2016 showed that the lump had stayed the same size, phew! It's also not a cancerous lump thankfully. The process of trying to remove such a lump by surgery would be very risky and very high risk of damaging my hearing so, its staying there for now and I just gotta cross my fingers it doesn't keep growing to the point it does start to impact my hearing seriously again, or cause other issues in the brain.

One of the changes I made regarding caffeine was to switch from normal blended tea, to Rooibos (Redbush tea). A naturally caffeine free tea that seems to be growing more in popularity of late, this definitely helped a LOT. I've always been a big tea drinker, so cutting out the caffeine altogether really helped.

Exercise definitely helps too, again with regards to blood circulation which I feel has a significant impact. I always notice if I've had an extremely physically active day, when I got to listen to music on my monitors it always sounds soo much better because I'm hearing better. My hearings always worst first thing in the morning after my body has just been resting on the bed.

So yeah, exercise, cut down on caffeine if you can (tough for the coffee drinkers I know), not too much alcohol or none at all if possible.

I'm still on the fence regarding listening to mono brown noise. I mean if you do listen to it for a few minutes then immediately listen to music again, it does seem to have a dramatic impact in making everything sound way better, almost like the noise is re-training the brain regarding the levels of information each ear is receiving and thus adjusting accordingly in its own internal settings.

But the problem is those adjustment seem to be short lived, and after a few more minutes my hearing returns to how it sounds before. Could listening to brown or some similar db/oct noise have long term improvements if you listen to it for much longer period each day like say an hour or two? I'm unsure, but possibly worth exploring to find out.
Old 16th October 2017
  #210
Lives for gear
 

Quote:
Originally Posted by Owen L T View Post
This being GS, with many of these posters being long-time members, I'm sure the people posting on here mean well. But the trouble is, that people may come along later, read these posts, and ... waste their money on snake oil.

So I have to say, again, that no peer reviewed study and no medical body anywhere in the world has ever found these herbal or supplement-based treatments to have any effect on the symptoms of tinnitus. None.

The Bill who suggested taking NAC, said on that same forum: "the Chinese have been taking Ginko for 3000 years for tinnitus and hearing problems" - which is a thoroughly disqualifying remark on many, many levels. The nonsense about ginko has been examined more than once and was thoroughly disproven in double-blind trials back in 2001.

There will always be people with anecdotal success stories - just as there are a certain percentage of people who experience remission from any number of other conditions, diseases and illnesses.

But not one of these has ever been shown to be more effective than a placebo.

Such evidence as there is regarding the very, very tenuous benefit of NAC relates to its use in limiting the hearing damage that can lead to tinnitus - https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4455974/

It was most certainly not "developed and used by the military for those who suffered from tinnitus". And I can say that with absolute certainty because, guess what: tinnitus has for some years been the number one complaint of US veterans. Yet, neither the VA nor any other site mentions any of these "treatments".

https://www.va.gov/health/newsfeatures/20110524a.asp

Tinnitus is Number One Disability For Veterans | Military.com

Here's one way to cut through the BS: the best estimates are that tinnitus currently affects, at a moderate-to-severe level, about 10% of the population. That's 30 million Americans at this moment. 6 million Brits. Hundreds of millions worldwide. When there IS something that is shown, clinically, to be effective - even if it helps as few as 25% of those sufferers - it will be a Big F****g Deal. It won't be some dude posting about Chinese herbal remedies on a forum: it will be front page news all around the world! (No, really, it will.)
Beat me to it. Props.

I esp loved (OK hated actually) this "the military came up with a treatment" which is utter BS...as is most snake oil nonsense. In fact the military of all people coming up with something medically ahead of the rest of the world is such a ridiculous concept it's hilarious. They're notoriously weak in that area. I wouldn't trust them to do more than put a band-aid on my finger.
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